Founded in January 2024, Long COVID Campaign fights for equitable, accessible and affordable treatment for all.
We advocate for accelerated research and expanded programs to support people living with and impacted by Long COVID.
We partner with patients, caregivers, heath workers, civil society, scientists and policymakers globally to develop, fund and scale solutions—and end Long COVID together.
LONG COVID CAMPAIGN PILLARS OF WORK
EDUCATING LEADERS: ACCELERATING RESEARCH & EXPANDING ACCESS TO CARE
We make evidence-based and community-informed cases for increased investment in research that will result in affordable access to the first FDA-approved treatments.
We fight to ensure care and support programs for patients are expanded and funded, as we wait for a cure.
MEDIA OUTREACH: ENSURING INCLUSION OF PATIENT PERSPECTIVES & ACCURATE COVERAGE
We engage media to raise public awareness and reach key leaders to further the fight to end Long COVID.
We educate press on Long COVID and highlight local Long COVID patients in their communities, to make the need for care and treatment visible and local.
LONG COVID POLICY REPORTS & ANALYSIS: DRIVING THE AGENDA FOR PATIENTS
We conduct non-partisan analysis of current policy efforts, to highlight opportunities for increased effectiveness and frameworks for partnership.
We track current research progress and roadblocks, releasing that information and analysis to media, leaders and the larger Long COVID community for awareness and engagement.
BUILDING THE LONG COVID COMMUNITY OF ORGANIZATIONS AND ADVOCATES
We aim to support a vibrant, diverse ecosystem of Long COVID groups and individual patient-advocates by creating open, flexible opportunities to engage and advocate for key moments and campaigns.
We support the inclusion and access of disabled and chronically ill members of the Long COVID community by awarding patient-advocate stipends and offering no-cost intensive assistance for travel and advocacy engagement.
In 2025, we plan to launch initial grants to a first cohort of diverse
Long COVID Community Champions, to support organizational and individual advocate growth and sustainability—and help the U.S. and global Long COVID advocacy sector be "greater than the sum of our parts".
LONG COVID CAMPAIGN LEADERSHIP
"More than four years into this pandemic, Long COVID treatment is still a 'DIY' project for most patients—
and that's got to change."
Meighan Stone, Long COVID Campaign executive director
Meighan Stone, Executive Director & Founder
A long-time non-profit executive and advocate before developing Long COVID, Meighan Stone has led projects with the United Nations, Bono's ONE Campaign, World Economic Forum and with political campaigns, world leaders and technology corporations globally. Named one of Fast Company’s Most Creative People, she previously served as a senior fellow at the Council on Foreign Relations, entrepreneurship fellow at Harvard Kennedy School, and as the founding president of Nobel Peace Prize laureate Malala Yousafzai's Malala Fund.
But none of those experiences were enough to overcome barriers to treatment and care when Meighan developed Long COVID. After becoming home-bound and disabled by Long COVID in early 2022, her advocacy started from bed when a Long COVID clinic informed her there no FDA-approved tests or treatments to help her or other patients.
After Meighan's condition improved due to the generosity and guidance of other Long COVID, POTS and ME/CFS patients online, she immediately began advocating for accelerated Long COVID research and accessible treatment for all. After organizing a diverse delegation of patient-advocates to attend a critical January 2024 Senate Long COVID hearing, Meighan launched the Long COVID Campaign with just her own medical GoFundMe funds and a Twitter account.
Today, LCC's work has quickly expanded to in-depth Long COVID policy and advocacy, media outreach and patient-advocate support. In 2025, she hopes to help further a global Long COVID research and funding compact in partnership with other patient-led organizations internationally.
Long COVID Campaign executive director Meighan Stone using her wheelchair on the right, with LCC patient-advocate Melissa Mazur standing at left, during a break at the September 2024 National Institute of Health RECOVER-TLC meeting.
